Impactful Patient Advocacy
Principles of Impactful Patient Advocacy
Being patient representative and impactfully advocating for patients rights and needs is not easy. Here you can find some guiding principles that might help you achieve your mission.
CLL Patient Voices Survey
The Patient Voices Survey asked CLL patients about their treatment preferences and involvement in treatment decisions. Patients feel that they and their doctor both have a high level of influence in the choice of treatment. Find out what matters to CLL patients when making treatment decisions.
The European Patients‘ Academy for Therapeutic Innovation - EUPATI
The European Patients‘ Academy for Therapeutic Innovation was established with the purpose of training and upgrading the skills of patient experts and representatives across Europe. Here you can find selection of basic educational materials.
Message from Health Economics experts
Please find closing statements from Health Economics experts: dr. Dávid Dankó and dr. Márk Péter Molnár
What is the primary objective of your patient organization/you as a patient representative?
What is the primary objective of your patient organization/you as a patient representative?
What are your biggest challenges in advocating for your patient group?
What are your biggest challenges in advocating for your patient group?
Your point of view: Is the patient’s voice heard?
Your point of view: Is the patient’s voice heard?
What are you gaining from Patient Advocates workshops?
What are you gaining from Patient Advocates workshops?
STAKEHOLDER MAPPING AND STAKEHOLDER MANAGEMENT FOR PATIENT REPRESENTATIVES
Knowing important stakeholders in health care systems is a key for success. In this short video you can find more on structured approach to Stakeholders management in Health Care.
How can Patient Organization leaders have constructive dialogues with authorities
Patient representatives and patient advocacy groups have an increasingly prominent role in health care decisions that governments, national health services and sick funds across Europe take. There is increasing attention from decision-makers towards patient groups and the perspective from which they contribute to debates on health care.