CLL Patient Voices Survey

Chronic Lymphocytic Leukemia Survey resultsAdvocacy Center

Please find a short video about patients treatment preferences and involvement in treatment decisions.

Top 3 drivers of treatment choice for patients

Long-term remission

Quality of life

Overall survival

Only 7% of patients indicate that duration of treatment is a driver of treatment choice

Influence of doctor and patient in treatment decisions

CLL patients felt that they and their doctor both had a HIGH LEVEL OF INFLUENCE

33% of CLL patients said they do not fully understand what their doctor tells them about their treatment

25% of CLL patients say their doctor does not involve them in treatment decisions

Overall treatment administration preferences

PATIENTS’ TOP REASONS FOR PREFERENCE

I wouldn't need to travel to the hospital so often
Tablets are less restrictive, I wouldn’t be attached to a drip
I’d only have to take a pill, there’d be no needles involved
It seems like a stronger treatment
I would only receive the treatment for a fixed period of time (I wouldn’t have to receive it forever)
It’s recommended by my doctor
It means I would have regular contact with my doctor/nurse
It seems like a stronger treatment
I would take my treatment at a fixed time
I would only receive the treatment for a fixed period of time (I wouldn’t have to receive it forever)

DISCUSS ALL TREATMENT OPTIONS WITH YOUR HEALTHCARE PROFESSIONAL

PHEM/HEM/0418/0004