The European Patients‘ Academy for Therapeutic Innovation - EUPATI

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The European Patients’ Academy (EUPATI) is a pan-European project implemented as a public-private partnership by a collaborative multi-stakeholder consortium from the pharmaceutical industry, academia, not-for-profit, and patient organizations. 

EUPATI The European Patients‘ Academy for Therapeutic Innovation was established in 2012 with the purpose of training and upgrading the skills of patient experts and representatives across Europe so that they can participate in biomedical research and development, and make meaningful contributions to clinical trials in all different therapeutic areas. Patient involvement is no longer only about including patients as study participants. Patient experts have proven to be valuable sources of information and support to the clinical development process from its earliest stages and the definition of research objectives to pharmacovigilance throughout the lifespan of a compound or treatment. 

 

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Originally developed as a flagship initiative of the EU’s Innovative Medicines Initiative, EUPATI remains a unique public-private partnership of about 30 partners where patients, regulators, industry and academia come together in a neutral and scientifically framed space to provide state of the art information to patient representatives and the general public in nine languages. 

EUPATI’s rigorous quality assurance process and Ethics Board guarantee that information provided through the EUPATI Toolbox and the Patient Expert Training Course is objective, unbiased and scientifically sound. 

You can rely on more than 3,000 articles, images, videos, charts and complete mini-courses for your patient education needs. We strongly believe and know that informed patients who are treated on equal footing in health care also have better health outcomes. It’s just knowledge! 

Please find link to EUPATI website https://www.eupati.eu/ and selection of basic educational materials on drug development, clinical trials, drug safety and patient involvement. 

All materials listed above” by EUPATI is licensed under CC BY-NC-SA 4.0

An introduction to clinical research

Selection of materials:

1. Evidence-based medicine
2. 5-step model of evidence-based medicine
3. Discovery and development of medicines
4. An introduction to clinical research
5. Clinical trial
6. Participants’ rights, responsibilities and role of Patient Organisations in Clinical trials
7. Patient involvement in medicines R&D (research and development)
8. Defining “patient”
9. Pharmacovigilance: monitoring the safety of medicines
10. Introduction to pharmacovigilance

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