5th Central Eastern Europe Network4Health meeting, Bucharest May 30-31st
With a mission to further continue supporting patient advocacy and close regional collaboration of patient organizations representing CLL and MM patients, Janssen hosted the 5th CEE Network4Health Meeting on 30-31th May 2019 in Bucharest.
Continuing the successful partnership with patient organizations, Janssen hosted the 5th CEE Network4Health Meeting on 30-31st May 2019 in Bucharest. Representatives from the prominent patient advocacy organizations across Central Eastern Europe (Bosnia& Herzegovina, Bulgaria, Croatia, Czech Republic, Hungary, North Macedonia, Poland, Romania, Serbia, Slovakia, Slovenia) dedicated to representing patients who are fighting blood cancers and actively advocating for their needs attended the meeting. The 2-day dynamic meeting agenda was designed in close partnership of Patient advocates active in haematology CEE Network and Janssen Patient Engagement & Advocacy team.
Patient advocates spent meaningful time discussing relevant topics and effectively working together with purpose to advocate for optimal and effective healthcare accessible for patients in need. Therefore, “Data evidence for Patient Value and Health Outcomes based Approach” workshop session, moderated by dr. Jakub Gierczyński (POL) served to enhance the knowledge about healthcare policies and needs at CEE regional level. Also, during the second day of the meeting, discussion was built around the preliminary results of project developed based on patients former initiative. The project acts on the opportunities for working together across the region and making sure patient voice is incorporated in the project as early as possible. Patient representatives discussion together with experts dr. Mark Molnar (HU) and Nora Pall provided deeper understanding of preliminary report of comparable cross-country healthcare data enriched with patient perspective. The project CEE Gap Analysis in haematology (with focus on CLL and MM) and its preliminary results that were shared are considered as meaningful advocacy tool that provides a real picture of the status of healthcare in our region and the next steps to be done by all key stakeholders.
We, as Janssen are proud of this networking and knowledge building platform for CEE patient advocates community and we'll continue to closely follow up on thoughts and ideas discussed as part of Janssen commitment of addressing unmet needs of patients.