Note from Jana Pelouchova, Patient Advocate DIAGNOZA LEUKEMIA, Czechia
“Patients have to be prepared to take part in decision making and they can only do that when empowered with information. One of the main roles of patients support organisations is to mediate knowledge on the disease and treatment option and to empower patients to take a proactive approach to treatment"
The well informed patient. Why knowledge matters. 2nd Int. Patient Empowerement Congress in Warsaw
What is the primary objective of your patient organization/you as a patient representative?
What are your biggest challenges in advocating for your patient group?