Note from Mira Armour, Patient Advocate Mijelom CRO, Croatia
“There is never enough information but its sheer amount can be overwhelming. Additional materials we can get from a trusted source are very important. Patients don’t know where to go so reliable sources like www.Janssen4Patients.com are very important especially in countries and regions where there aren’t any patients’ organisations. As we know better educated patients have better results in treatment and this is why it is so important”
Stakeholder mapping and stakeholder management for patient representatives
The well informed patient. Why knowledge matters. 2nd Int. Patient Empowerement Congress in Warsaw
What is the primary objective of your patient organization/you as a patient representative?