ABOUT DISEASE

The purpose of this website is to give you and your loved ones as much valuable information on this hematological disease as possible. It is designed to help you understand the information given by the physicians and the medical staff.

The text is written in a comprehensible manner. It presents various possible reasons for the onset of the disease, symptoms and the path to diagnosing multiple myeloma. You will learn about what to expect from various treatment options currently available. A lot of attention has been placed on the social aspect of the disease, as many patients find care and support from other patients to be of utmost help.
We hope that this information will offer useful explanations and complement the instructions and information given to you by your personal physician/hematologist. Please refer to the medical staff for a clear explanation of your condition and treatment possibilities available to you.

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TREATMENT

Multiple myeloma treatment options have increased significantly over the past decade. New treatments have been made available to doctors and offered to patients. This has signifficantly improved treatment outcomes and the quality of life of multiple myeloma patients. People respond differently to treatment. Your doctor will assess your medical history, treatment goals and lifestyle before recommending the best treatment plan for you. They will look at factors such as your age and individual profile. If your multiple myeloma has progressed, your doctor will also take into account how you've reacted to your treatment for multiple myeloma in the past.

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    SUPPORT

    • AFTER DIAGNOSIS
      The patient experiences a variety of feelings after the announcement of a serious diagnosis and shows different psychic reactions. After a period of shock, there may be an attempt to deny an unfavorable message, followed by aggression, deep depression, unreasonable hope in miraculous procedures and ultimately acceptance of the diagnosis and rational cooperation with health workers.
    • FAMILY
      Share your health information with your partner, a family member or friend as soon as possible. It is best if you get all the information from your physician, preferably at the same time. This prevents any misunderstanding.
    • BE ACTIVE!
      Become an active partner in the treatment process. To be an active partner, hand-in-hand with your doctor, you should get enough information to understand the nature of the disease and its treatment.

    Patient stories

    • Mr. Peter's story
      Mr. Peter's story (Czech Republic) After the initial shock, you start to look in the rear view mirror and do your balances. At first, what did I miss or do wrong. But then I went in another direction and realized that I hadn’t wasted my life, that I accomplished things, started a company, had fun and lived a lot.
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    • Mr. John's story
      Mr. John's story (Czech Republic) This experience with my illness, which the Internet deems incurable, was incredibly valuable to me. It was, in a way, a gift. I reassessed many things in my life. Many priorities shifted and I started to value relationships instead of things.
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    • Changing everything
      Changing everything (Slovakia) In April 2005, I was diagnosed with multiple myeloma – a cancer formed by malignant plasma cells found in the bone marrow. I accepted the illness with sadness but with humility.
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    Videos

    What is Multiple Myeloma? Multiple Myeloma
    Myeloma Patient Information Animation Multiple Myeloma
    Understanding Multiple Myeloma Multiple Myeloma