How do I tell my loved ones that I've fallen ill?
"I feel like my family is taking it harder than I am. The treatment keep me so busy; doctors and the medical staff help me out. But my family feels like a helpless observer".
Ana, 67 years old
Get support – get in contact with a group of patients suffering from multiple myeloma. There are several groups in your hometown and elsewhere. Members of these groups often suffer from the disease themselves or sometimes their spouse suffers from multiple myeloma. They try to understand what your body and mind are going through. Regular meetings are held by these groups, helping to connect patients, their relatives and friends. Several times a year patients and physicians exchange information on the disease and treatment options.
You can share your story with other multiple myeloma patients via email or a letter. People in these groups will understand your emotions when the doctor first told you the news. They understand how difficult it was to accept it. Perhaps you will feel despair. The avalanche of all medical data on possible treatments available to you can be overwhelming. Fear that accompanies this kind of situation can seriously impair the ability to see the situation from a more positive perspective. When sharing bitter and sweet moments of your life with other multiple myeloma patients, support comes from people who actually understand your position because they have been down this road before. Do not hesitate to contact them.
"Multiple myeloma is a baggage that needs to be carried around until the end. Sometimes it gets very heavy. But I've been fortunate enough not to carry it all by myself. Doctors, family and friends, as well as other multiple myeloma patients help me out".
Jan, 67 years old