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Organization
Crohn's disease

Slovak Crohn Club

Jurigovo nám. 1, Bratislava
www.crohnclub.sk
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Slovak Crohn Club je občianske združenie pacientov s IBD ochorením (Crohnovou chorobou a Ulceróznou kolitídou), ktoré funguje už od roku 1993. V súčasnosti má asi 400 členov, na Slovensku je však diagnostikovaných viac ako 15 000 pacientov. Hlavné úlohy klubu: • združovať pacientov s Crohnovou chorobou (MC) a Ulceróznou kolitídou (UC), umožniť im vzájomný kontakt a výmenu teoretických a praktických skúseností súvisiacich s týmito chorobami (životospráva, diéta, možnosti športových aktivít...) • edukovať pacientov o ochorení MC a UC, o nových spôsoboch liečby a liekoch a rozširovať tieto poznatky medzi pacientov prostredníctvom odborných prednášok, seminárov, online komunikácie (web, sociálne médiá) a klubového časopisu Bulletin • organizovať edukačné stretnutia s odborníkmi z viacerých oblastí (gastroenterológia, chirurgia, dermatológia, reumatológia, psychológia, a i.), rekondičné pobyty pre členov klubu, súčasťou programu je kurz základov jogy a relaxácie, turistické výlety a odborné prednášky • spolupracovať s európskymi klubmi podobného zamerania združenými v EFCCA (European Federation of Crohn´s and Ulcerative Colitis Associations) • organizovať spoluprácu všetkých, ktorí môžu prispieť k zlepšeniu zdravotnej a sociálnej úrovne pacientov (napr. Slovenská gastroenterologická spoločnosť, Asociácia na ochranu práv pacientov, odborné spoločnosti, atď) Slovak Crohn Club www.crohnclub.sk https://www.facebook.com/crohnclub/ https://www.instagram.com/slovakcrohn_club/
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Last update: 2021-01-14 12:10:18